Travel all over the countryside...Part 2

Yes, this birthday celebration is so big, it needed another post....

Travel all over the country side....Birthday Bonanza goes interstate : )

What a week! Our first trip home to Qld since the man was first diagnosed. The weather - TO DIE FOR!! 22-26 degrees pretty much every day. It was so nice to walk outside without feeling cold. We soaked it up!!

Rocky got to visit Nana & Poppa Hohn in their new house, visit Grandma and Pop Crawford in Beaudesert for the very first time (to Beaudesert that is!) and what a wonderful week spending time with our families, Shelly, Corteney, Brent, Michael, Melissa, Kylie, Priscilla..our Mums & Dads, Nanny Arthy, Pop Arthy, Rosie, Suz & Non, Libby & Don - thanks for making it such a wonderful trip! ....the pictures say it all. So do the 3 hour daily sleeps Rocky needs to recover from being such a social beast all week! For those wondering, yes I am indeed enjoying the afternoon nap too.... ; )

Happy 3rd Birthday Rocky!!

What a month! Rocky turns 3 on Monday 20th and we have had enormous joy so far helping him celebrate! How wonderful that his Aunty Priscilla is here from Canada to help us celebrate (although, sadly, not his beloved Uncle Petey - but we will make up for it in October!) and we also head home to Queensland next week to celebrate with everyone there. Can't wait. It's also my Dad's 60th on the 21st, which will be very special.

News, news, news! Where do I start? Today Rocky had his first ever birthday party with some of our dear friends. It was lots of fun and quite emotional for Brett and I! It seems incredible sometimes, just how far we've come. But we are so 'there!' And how lucky to have such wonderful friends and family to celebrate with!

Last week Rocky was tested to see if he was making his own B Cells (antibodies - which is what IVIg basically is) He is! Can you believe that?? He is making his own - This is just SO fantastic. To cut a long story short, and I'm not even sure I understand the whole process, B Cells need T Cells to either produce or work properly. So now he has the T Cells, the B Cells are coming to the party. The next step is to see if they can work as well ie. Can they party hard?? LOL

We are waiting on confirmation from RCH on the plan forward, but please keep your fingers crossed that Rocky's B Cells are in nice working order! If this is the case, I think he comes off the IVIg. YAY!! Oh yeah, it's SO good to have some progress!

Other than that, Rocky has just been testing the boundaries, like every other cheeky 3 year old. And I, his mere mother, have tried not to laugh at the very many funny, but inappropriate cheeky acts (such as poking out his tongue at me). The one thing I know is I completely underestimate how much he has my number! Sometimes, I give him the benefit of the doubt, but he has it totally worked out!

With Lots of Love xoxoxoxo

A Visit From Grandma and Pop

It's been a big few weeks with a long awaited visit from Grandma and Pop. We had a blast esp. Rocky who had playmates 24/7 and so much for a holiday for Mum Dad, I think they went home exhausted. They were in bed nearly every night before us and we were up before them!! Ha ha, yes, little boys wear you out. Unfortunately, during the course of the week I got sick and now Rocky has ended up with a little cold. It's kind of a double edged sword. The Dr's say although Rocky's T Cell count is only 25%, his function is normal, and so they think he'll be able to fight it off. We are keeping a very close eye on it and although it's worrying to see him have a cold, it will be exciting when (yes, I'm being optimistic!!) he eventually fights it off. All signs good so far with things not getting worse, no temps etc. Rocky has loved it as he been able to sleep with his Dad every night! If it wasn't for the cough, I'd say he's milking it a bit ; ) It's been very cold here, so we've stayed inside, not being very adventurous at all as we all want to get better.

Rocky still has stuff going on with his hearing, so he has finally been fitted with a bone conducting hearing aid and when you look at the pictures, you'll now know, it's not some funky new trend (altho he may end up being some kind of fashion muse), or some crazy mum deciding to put a headband on her son....it's his hearing aid tucked away in there. I have noticed people at the shops sort of looking, and I know they are thinking....I'm sure that's a boy, but he's wearing a headband. I suspect they are feeling the same fear of 'getting it wrong' as when someone asks you if your pregnant or not (and of course, you aren't!) ouch.... or maybe they aren't thinking anything at all, just looking at one very cute little boy...LOL

Grandma & Pop bought Rocky the microphone stand (he's had to use his hand before now, poor deprived child!) and I'm sure you'll agree, he's a natural!! I hope you enjoy the video as much as we did.

Just a quick note (if your reading!!) before we go to give a VERY HUGE CONGRATULATIONS to Brooks and Emily on the bith of their beautiful new daughter. We are all thrilled for you.

Keep smilin' everyone : )

With lots of love Amanda, Brett,Rocky xoxoxox