Hi Y''all, The little man went into PICU at 3.30pm yesterday. He had a rough night. He had a reaction to the thymoglobulin (which we knew could happen) so had high temp (nearly 40 degrees), sweating, heaving breathing, very irritated with a rash and little red welts all over his body, and his eyes were swollen shut when I went in last night. To manage the reaction they slow the infusion down by half, which improved things, by the time I left the room last night he could open his eyes and see me which was great. The welts/rash persisted during the night but the infusion finsihed this morning and so he is looking (and clearly feeling!) much better. He was trying to pull all the cords attached to him and he had some food and was playing a little so he must be feeling that bit better. I saw the doctors this morning and the thymoglobulin is working just as it should, his lymphocyte count is down which is what the TG is used for, so that's good news leading into Operation Thymus!
He will remain in PICU for the full 3 days now instead of just 12 hours at a time and coming back to the room. I haven't seen him look that unwell since he first got sick, which was a little distressing, but we know it's short term for the greater good - so we will get through it! Take care
1 comment:
Good Luck Rocky! You can't see me but i'm waving at you from Picu room 3 (you know how isolation is) I wish you the best with your TG. Tell your mom to give my mom a call anytime.
Love and Prayers,
Little Coop
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