We found out today (from blood tests done in Nov) that Rocky's ''good'' T Cell count has not risen from a few months ago. On the up side the ''bad'' T Cells are dropping in numbers. He had his monthly IVIG today so more bloods are being sent to Duke and we hope the results this time are what we want to see so we can move him off the immune suppressant (are you getting a sense of deja vu ) Yes, we've been hoping this for some time.Oi, just when I think my patience has improved....LOL Reality check.
It feels like a set back and we are disappointed, but in truth, things are moving in the right direction. Dr Markert is happy with the progress and there are lots of other really good things happening as well. Rocky remains really well, is getting incredibly mobile (climbing stairs very quickly and stealthily, goes for a ride on his bike every day, plays on the swings) and is eating like a little champ and has now added popcorn, fish fingers, chicken nuggets, smarties and snack pack to the collection of things he'll eat. Still will not have a bottle but he'll drink from a cup a bit. So the tube remains for the time being. I am pretty confident if we chocolate coated everything he would have a taste of it. Certainly he is his mother's son. I can't even crack open a chocolate bar these days without sharing : ( And no such thing as trying to hide what you are eating, little eagle eye watching our every move and doesn't mind a bit of emotional blackmail to get it. Good one, Rocky! You are learning so fast. ; )
It feels like a set back and we are disappointed, but in truth, things are moving in the right direction. Dr Markert is happy with the progress and there are lots of other really good things happening as well. Rocky remains really well, is getting incredibly mobile (climbing stairs very quickly and stealthily, goes for a ride on his bike every day, plays on the swings) and is eating like a little champ and has now added popcorn, fish fingers, chicken nuggets, smarties and snack pack to the collection of things he'll eat. Still will not have a bottle but he'll drink from a cup a bit. So the tube remains for the time being. I am pretty confident if we chocolate coated everything he would have a taste of it. Certainly he is his mother's son. I can't even crack open a chocolate bar these days without sharing : ( And no such thing as trying to hide what you are eating, little eagle eye watching our every move and doesn't mind a bit of emotional blackmail to get it. Good one, Rocky! You are learning so fast. ; )
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