and so in a mad rush I thought that I must update this blog! Phew....another year! (nearly) and what a fantastic one! Mostly ups with a few downs but Rocky has been so well.
Things are pretty stable here (hence the lack of updates!) that....and if I'm honest I haven't been so diligent about charging the camera batteries. So, what's the Man been up to???
Naive T Cell count testing will now be done bi-monthly, so no news for December but we will have some in January (let's hope he's going strong!). We are waiting on news from the last Tetanus shot - and how well his T Cell's responded. I spoke with the Immunopathologist a while ago and everything is great! When Rocky's T Cell's were tested for function, they showed a normal response. His amount of T Cell's may never be as high as a regular child, but the function is perfectly normal. So exciting!!!
So we've been slowly but surely getting out and about, braving the backyard (kids) pool, decorating Christmas trees and chasing our dogs (who escaped a couple of weeks ago and returned about 48 hours later - we were so relieved we didn't even punish them!) They slept for two days and it took them about a week to return to their normal, naughty selves.
If everything goes well (but we have both feet firmly on the ground just in case!) Rocky only has 3 more IVIG's and then he will be effectively ready for the world. It seems so surreal that we are even talking this way!!! How far he's come and we are so excited for him.
I'm not sure what else we've been up to, but we've been busy (this memory loss does happen as you get older LOL).
Wishing everyone reading a VERY Merry Christmas! We hope you had a great year. For those who kept the Man in their prayers, God Bless you and thank you so much.
With Lots of Love Brett & Amanda xoxox
ps. NY resolution - update blog more ; )
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