Playtime Pt II

Well, it's been a fiesta of play dates and Rocky has been having a ball. I believe, sad but true, that his old mum is just a bit boring for him now ; )
January T Cell count was just 19%, so no real change from November (he is only getting tested bi-monthly now). To be honest it was disappointing but I'm not really sure what this means in terms of his recovery...if it's stalled or he's just having a slow couple of months. We are very disappointed but really, what can you do? Just hope the next test is much better. I'll seek a more detailed explanation from the Dr's at our next visit in a week or so.
Everything else is GREAT! It's pretty exciting to have Rocky playing with a couple of children at a time and remain well, no close calls, which is a really a big highlight (and relief) for us. We can't wait to do it more.
Last night was the first night in a bed (moving from the cot). You will notice from the sheets that we need new, single bed (and hopefully matching) sheets! LOL Rocky LOVES it so far and we thought he might get out and try to play with toys or get out of his room, but this morning he sat on his bed, enjoying the view from his window and didn't even come out when his Dad got up to get him. I kinda thought he'd come into our room at crack o' dawn and I'd open my eyes to see him standing next to our bed and then accidentally scare the pants off him when I screamed with surprise. Are you getting a sense of exaggerated drama from me? LOL i will stop now.
Those in Australia - enjoy your long weekend ! We love a day off here - bring it on!

It's............PLAYTIME!!

It's been an absolute joy to watch Rocky have a few 'playdates'. He had moments of shyness at first, just kind of doing his own thing, but it has not taken long to move to show off mode. It's lots of fun. We are still being very careful but , touch wood, things have been and hopefully will continue to go well for the man. This week, his cousins Corteney and Brent are down from Queensland and it has been so much fun!
We hope to have the latest test results sometime this week. We are crossing our fingers they will be as good as the Nov results. Stay tuned....& Happy New Year!

Twas the Day B4 Christmas....

and so in a mad rush I thought that I must update this blog! Phew....another year! (nearly) and what a fantastic one! Mostly ups with a few downs but Rocky has been so well.
Things are pretty stable here (hence the lack of updates!) that....and if I'm honest I haven't been so diligent about charging the camera batteries. So, what's the Man been up to???
Naive T Cell count testing will now be done bi-monthly, so no news for December but we will have some in January (let's hope he's going strong!). We are waiting on news from the last Tetanus shot - and how well his T Cell's responded. I spoke with the Immunopathologist a while ago and everything is great! When Rocky's T Cell's were tested for function, they showed a normal response. His amount of T Cell's may never be as high as a regular child, but the function is perfectly normal. So exciting!!!
So we've been slowly but surely getting out and about, braving the backyard (kids) pool, decorating Christmas trees and chasing our dogs (who escaped a couple of weeks ago and returned about 48 hours later - we were so relieved we didn't even punish them!) They slept for two days and it took them about a week to return to their normal, naughty selves.
If everything goes well (but we have both feet firmly on the ground just in case!) Rocky only has 3 more IVIG's and then he will be effectively ready for the world. It seems so surreal that we are even talking this way!!! How far he's come and we are so excited for him.
I'm not sure what else we've been up to, but we've been busy (this memory loss does happen as you get older LOL).

Wishing everyone reading a VERY Merry Christmas! We hope you had a great year. For those who kept the Man in their prayers, God Bless you and thank you so much.
With Lots of Love Brett & Amanda xoxox
ps. NY resolution - update blog more ; )

You Can Never Start Too Young....

Some people say child labour is an outrage....I say you can never start 'em too young! Just kidding of course.....! At this stage, Rocky actually wants to help me with the washing, vaccuming, hosing the lawn, pretty much anything I'm doing he wants to do too....it's great fun! I am cherishing it as I know it does not last!

Today we took a trip to the park and were lucky enough to find a play gym with not a child in sight....and so we had a bit of fun in the sun : ) Enjoy