Well, not quite! but here is a vid of the little actor prentending to leave with suitcase in hand. It is one of very many adorable things Rocky's been doing lately (not a biased mother talking at all!!). It was so exciting this week as well, for the first time he put two signs together - he is learning signing to help him communicate as there will be speech delay. What he told me was he wanted more to eat. It was thrilling and we are so proud of him.
We are glad to hear from RCH this week that his 'bad' T Cells continue to drop in numbers. We are still waiting on the latest tests (done 22nd July) to find out what the good cell numbers are. Rocky has had a rash on his hands and feet which we have been unable to get rid of. It is becoming a bit concerning. We are trying to get to the bottom of it. Dr's say it's unlikely to be GVHD (graft vs host disease - where your body fights the transplant tissue) although he has not been formally checked for this just yet. It can be treated. Another idea is that is might be the 'bad' T Cells, what's left of them, reeking a bit of havoc. He's also had eczema, and without getting too much into it....the immune suppressant would have kept eczema in check but also the bad cells....so it's hard to know which could be playing up. We worry but are trying to keep an open (and sane!) mind until we hear anything for sure. Please keep the man in your prayers, he still has a way to go! Thank you and With lots of love xoxo
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