Hi everyone, Sorry it's been a while between blog bits. We found out about a week ago and we wept with relief and happiness that the July naive T Cell's were up quite a bit to 9.5% (up from 6.3% the month before). Still a way to go but this good news keeps us going strong! Thanks to everyone who continues to support Rocky and keep him in their prayers - we know it makes a difference.
As 2 y.o's do, Rocky has been doing some very funny things. For the longest time we have discouraged him kissing us because of the transfer of germs, but we are feeling a bit more confident so he can give his mum and dad a kiss (when we are well of course!) and he does very often lean over for a kiss and cuddle and it's beautiful. He's been experimenting with walking around with his eyes closed (lol!) and loving his shadow - or maybe it's just his profile he adores. At any rate, we are constantly waiting for him to collide with the wall checking out his shadow, rather than looking ahead. I think the piece de resistance must be, though, Brett, myself and my sister Priscilla (visiting from Canada) sitting at the table eating dinner, we hear this almighty roar of excitment and then Rocky tearing up the hallway at a million miles an hour with his car thingy and we all just sat terrified, as wheels lifted off the ground when he turned corners and took off again in the other direction. So if you see a few bruises in the pictures, just know that he cannot be stopped and that we are amazed they are all the bruises he has!
Everything is great.....his levels for just about everything have really stablised and after a very long battle with high Urea, it's finally coming down we are nearly in the normal range. RCH are pretty confident the rash is just eczema, but we will know for sure next week. But it's looking good which is such a relief. Teeth, which were once a concern in their absence, are now coming down thick and plenty (I think there are at least 5 on the go). Rocky tried to relieve the discomfort by attempting to nuzzle (bite!) me on the knee this morning. Everyone always said be careful what you wish for...
Have a great weekend : )
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