Yay Hey Hey 9.5%!!!

Hi everyone, Sorry it's been a while between blog bits. We found out about a week ago and we wept with relief and happiness that the July naive T Cell's were up quite a bit to 9.5% (up from 6.3% the month before). Still a way to go but this good news keeps us going strong! Thanks to everyone who continues to support Rocky and keep him in their prayers - we know it makes a difference.
As 2 y.o's do, Rocky has been doing some very funny things. For the longest time we have discouraged him kissing us because of the transfer of germs, but we are feeling a bit more confident so he can give his mum and dad a kiss (when we are well of course!) and he does very often lean over for a kiss and cuddle and it's beautiful. He's been experimenting with walking around with his eyes closed (lol!) and loving his shadow - or maybe it's just his profile he adores. At any rate, we are constantly waiting for him to collide with the wall checking out his shadow, rather than looking ahead. I think the piece de resistance must be, though, Brett, myself and my sister Priscilla (visiting from Canada) sitting at the table eating dinner, we hear this almighty roar of excitment and then Rocky tearing up the hallway at a million miles an hour with his car thingy and we all just sat terrified, as wheels lifted off the ground when he turned corners and took off again in the other direction. So if you see a few bruises in the pictures, just know that he cannot be stopped and that we are amazed they are all the bruises he has!
Everything is great.....his levels for just about everything have really stablised and after a very long battle with high Urea, it's finally coming down we are nearly in the normal range. RCH are pretty confident the rash is just eczema, but we will know for sure next week. But it's looking good which is such a relief. Teeth, which were once a concern in their absence, are now coming down thick and plenty (I think there are at least 5 on the go). Rocky tried to relieve the discomfort by attempting to nuzzle (bite!) me on the knee this morning. Everyone always said be careful what you wish for...
Have a great weekend : )

Rocky's Leaving Home...

Well, not quite! but here is a vid of the little actor prentending to leave with suitcase in hand. It is one of very many adorable things Rocky's been doing lately (not a biased mother talking at all!!). It was so exciting this week as well, for the first time he put two signs together - he is learning signing to help him communicate as there will be speech delay. What he told me was he wanted more to eat. It was thrilling and we are so proud of him.

We are glad to hear from RCH this week that his 'bad' T Cells continue to drop in numbers. We are still waiting on the latest tests (done 22nd July) to find out what the good cell numbers are. Rocky has had a rash on his hands and feet which we have been unable to get rid of. It is becoming a bit concerning. We are trying to get to the bottom of it. Dr's say it's unlikely to be GVHD (graft vs host disease - where your body fights the transplant tissue) although he has not been formally checked for this just yet. It can be treated. Another idea is that is might be the 'bad' T Cells, what's left of them, reeking a bit of havoc. He's also had eczema, and without getting too much into it....the immune suppressant would have kept eczema in check but also the bad cells....so it's hard to know which could be playing up. We worry but are trying to keep an open (and sane!) mind until we hear anything for sure. Please keep the man in your prayers, he still has a way to go! Thank you and With lots of love xoxo

Happy 2nd Birthday Rocky !!

Rocky is having a great birthday....starting out by being allowed to stay up late the night before We attempted to see the new Batman film, thinking he would fall asleep on the way there. He was still VERY wide awake when we arrived at the drive in. After a few beeps of the horn and flashing of the lights at the other patrons (by Rocky, not us!) , we realised there would not be nearly as much movie watching as we'd hoped. We still don't know what the film is about. Rocky finally fell asleep at 9.05 and the movie finished at 9.15pm. Way to go, Rocky. We know it's your birthday, but did you really have to rub it in.

Today he has relished all the new toys, clothes and being allowed to eat as much chocolate as he likes. It's wonderful and what a fantastic milestone that he is so well and healthy celebrating birthday number 2.....we have loved every minute !